Periodic Paralysis Documentary Video Series

Top 5 Things To Know Living with Periodic Paralysis
You're Not Alone EP 02

Have you been diagnosed with Periodic Paralysis? Trying to find answers?

Here are the Top 5 most asked questions about living with periodic paralysis:

1. Know your type of PP

2. Advocate for Yourself

3. Know your triggers

4. Symptoms come and go

5. Proper Diet

This is a great list. We’d love to provide more simple Top 5 lists in the future. Let us know what lists would be useful for you!

One of the exciting new ways we are advocating for Periodic Paralysis in this new initiative is the production of three unique series of videos launching on our new Youtube channel.

“A Rare Adventure” is a series that highlights what it’s like living with Periodic Paralysis; including interviews with people just like you, how they get through their day, just living the adventure… day-to-day with this rare disease.
“You’re Not Alone” is aimed at those who are undiagnosed or still searching for answers to their symptoms. These videos include a plethora of real-world knowledge and insight on topics such as: why can’t I move my muscles, the high probability of being misdiagnosed, people even believing you have a disease, support systems, and much, much more.
“Ask the Expert!” is a series that features leading Neurologist and Muscle Physiologist Dr. Steven Cannon directly answering your questions from our website, Facebook, Instagram, and even on our Youtube channel. Whether you are new to PP, undiagnosed, or diagnosed for a long time; we all have questions. And sometimes the answers are hard to find. So, ask us!

Watch Our Latest Videos:

Each week we will share a new video right here.

So that you don’t miss it, make sure you subscribe below. It’s the number one way to stay informed about the latest PPA updates. We are very excited to bring you this fresh new PPA experience. There is so much more to come, so stay tuned!

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I have been diagnosed with PP and am looking for help. I have not been diagnosed with PP but curious to learn if I have it. I am overwhelmed with the information available or lack thereof. I am looking for help managing my symptoms and learning how to balance my lifestyle changes. I have been diagnosed with PP, am managing my symptoms, but want to learn more and help anyway I can I know someone who has PP. I want to become an advocate and help spread the word about PPA. I am interested in becoming a part of the PPA for other reasons.

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