Periodic Paralysis Documentary Video Series
One of the exciting new ways the PPA is advocating for Periodic Paralysis in this new initiative is the production of three unique series of videos launching on our new Youtube channel.
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Watch All Episodes In These Series:
A Rare Adventure
A series that highlights what it’s like living with Periodic Paralysis; including interviews with people just like you, how they get through their day, just living the adventure… day-to-day with this rare disease.
You’re Not Alone
This series is aimed at those who are undiagnosed or still searching for answers to their symptoms. These videos include a plethora of real-world knowledge and insight on topics such as: why can’t I move my muscles, the high probability of being misdiagnosed, people even believing you have a disease, support systems, and much, much more.
Ask the Expert
A series that features leading Neurologist and Muscle Physiologist Dr. Steven Cannon directly answering your questions from our website, Facebook, Instagram, and even on our Youtube channel. Whether you are new to PP, undiagnosed, or diagnosed for a long time; we all have questions. And sometimes the answers are hard to find. So, ask us!
Ask The Expert
Genetic Testing Discoveries Helping PPA Patients
In Part 1 of this 2 part series on the importance of Genetic Research as it pertains to Periodic Paralysis, Dr. Cannon explains in detail the process of his research for PP. In part 1, we discover how he and his genetic team modifies DNA in mice to mimic muscle excitability in periodic paralysis patients. We further learn of the exact process and why his work is important.
In Part 2 of this 2 part series on the importance of Genetic Research as it pertains to Periodic Paralysis, Dr. Cannon explains in detail the process of his research for PP. In part 2, Dr. Cannon discusses mutations on genes in ION channels, how they test the muscles, as well as how you can participate in funding the research.
We want to thank Strongbridge Biopharma® (now Xeris Biopharma™️) for sponsoring these episodes. You can learn more about how they help patients with Periodic Paralysis by visiting: www.xerispharma.com
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