Periodic Paralysis Documentary Video Series

One of the exciting new ways the PPA is advocating for Periodic Paralysis in this new initiative is the production of three unique series of videos launching on our new Youtube channel.

Latest Episode:

Subscribe To Our  Video Series

Latest Episode:

Subscribe To Our  Video Series

We want to thank Strongbridge Biopharma® (now Xeris Biopharma™️) for sponsoring these episodes. You can learn more about how they help patients with Periodic Paralysis by visiting: www.xerispharma.com

Happy GivingTuesday! Today we are giving a voice to rare diseases by sharing the most impactful episodes of our docu-series. Then at 6 PM tonight, join us LIVE on Facebook because we have an exciting announcement to share with you all.

Last year we raised over $17,000 for GivingTuesday and we can’t thank you enough for your support. This year we want to go above and beyond to raise money that will help support Dr. Cannon’s research and help us continue to build a library of science-based information to educate everyone about Periodic Paralysis.

With your help, we know we can reach our new goal of $25,000.

There are so many ways to get involved. Here’s how you can help:

1. Share this video and all our videos all day long to help spread awareness about this complex, mysterious rare disease. You can tag your friends, share the videos with your own personal story, or just forward the links to everyone.

2. Sponsor a PP Mouse or Research Hours in Dr. Cannon’s lab for as little as $10. That’s right, now you can sponsor actual PP research monthly or as a one-time donation.

3. Get an “I Never Fake It” T-Shirt for yourself or for a friend as a gift. We love showing off these shirts because it gives us a chance to spread awareness and explain PP to others.

4. Donate directly through Facebook and they will match it! To help raise awareness of charitable causes and encourage donors’ generosity, Meta will match $8 million USD in qualifying donations made on Facebook during GivingTuesday. So match away!

We can’t thank you enough for your continued support.

Love,

The PPA

The Periodic Paralysis Association has been #GivingAVoice to those who are living with a very disease called Periodic Paralysis over the past year and now we want you to help us share those voices with as many as possible this GivingTuesday season.

GivingTuesday is a global generosity movement, unleashing the power of radical generosity to transform communities and the world. GivingTuesday will take place on November 30, 2021.

It was created in 2012 as a simple idea: a day that encourages people to do good. Over the past nine years, this idea has grown into a global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. GivingTuesday is an opportunity for people around the world to come together to thank, help, give, show kindness, and share what they have with those in need. People can show their generosity in a variety of ways during GivingTuesday⁠⁠—whether it’s helping a neighbor, advocating for an issue, sharing a skill, or giving to causes—everyone has something to give and every act of generosity counts.

This GivingTuesday the PPA is #GivingAVoice to those living with PP with videos about advocating, education, vulnerability, and sharing. Look out for a new #GivingTuesday episode every Tuesday in November at 10 AM EST. Share these videos far and wide to help us unleash the power of radical generosity. Then on November 30, join us as we go live and celebrate  GivingTuesday!

Ask The Expert

Genetic Testing Discoveries Helping PPA Patients

In Part 1 of this 2 part series on the importance of Genetic Research as it pertains to Periodic Paralysis, Dr. Cannon explains in detail the process of his research for PP. In part 1, we discover how he and his genetic team modifies DNA in mice to mimic muscle excitability in periodic paralysis patients. We further learn of the exact process and why his work is important.

In Part 2 of this 2 part series on the importance of Genetic Research as it pertains to Periodic Paralysis, Dr. Cannon explains in detail the process of his research for PP. In part 2, Dr. Cannon discusses mutations on genes in ION channels, how they test the muscles, as well as how you can participate in funding the research.

We want to thank Strongbridge Biopharma® (now Xeris Biopharma™️) for sponsoring these episodes. You can learn more about how they help patients with Periodic Paralysis by visiting: www.xerispharma.com

Watch All Episodes In These Series:

A Rare Adventure

A series that highlights what it’s like living with Periodic Paralysis; including interviews with people just like you, how they get through their day, just living the adventure… day-to-day with this rare disease.

You’re Not Alone

This series is aimed at those who are undiagnosed or still searching for answers to their symptoms. These videos include a plethora of real-world knowledge and insight on topics such as: why can’t I move my muscles, the high probability of being misdiagnosed, people even believing you have a disease, support systems, and much, much more.

Ask the Expert!

A series that features leading Neurologist and Muscle Physiologist Dr. Steven Cannon directly answering your questions from our website, Facebook, Instagram, and even on our Youtube channel. Whether you are new to PP, undiagnosed, or diagnosed for a long time; we all have questions. And sometimes the answers are hard to find. So, ask us! 

Your PP Journey Begins Here

Let us help you navigate this complex world of Periodic Paralysis