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The Agenda

Friday

• 3pm – Registration opens for PPA Patients and families and Social Time is available until 8pm.
• 4pm – Welcome from Jacob Levitt MD
• 4:15pm – Patient share stories: open mic. Suggested sharing points:
• a) What kind of PP do you have?
• b) Where are you from?
• c) Who are you here with?
• d) What brings you here?
• e) One positive experience with PP
• f) One negative experience with PP
• 5:00pm – Break
• 5:10pm – More stories
• 6:00pm – End for the evening, go to dinner

Saturday

• 8:15am – Registration opens for PPA Patients and Families
• 9:00am – Welcome from PPA President Jacob Levitt and Board Introduction
• 9:20am – James Cleland/Jacob Levitt – Differential Diagnosis of Periodic Paralysis
• 9:50am – James Cleland/Jacob Levitt – Diagnostic Tests for Periodic Paralysis
• 10:20am – Break
• 10:30am – James Cleland – The New Zealand Experience?
• 11: 00am – Questions
• 11:10am – Nadia and Ukraine Doctor – PP in the Ukraine
• 12:15pm – Party Lunch and Webinar Questions are due
• 2:00pm – Grace Charles –Yoga for the Neurology Patient and Alternative Therapies
• 3:00pm – Segal – Update on Lidocaine research
• 3:30 – 4:15pm –Round Table with Dr. Lehmann-Horn, Dr. Cleland, Dr. Charles, Dr. Segal, and Dr. Levitt
• 4:15 – 5:00pm – Webinar Questions (doctors only)
• 5:00pm – Conference Ends for the Day
• 6:15pm – Speakers’ dinner: Lehmann-Horn, Cleland, Levitt, Segal, Charles, (?Griggs, doctor from Ukraine, others?)
• 7:30pm – 8:30pm – Piano Recital MAYBE

Sunday

• 9:00am – State of the PPA: current financial health, what we have done, what we plan to do, the need for meaningful help
• 9:10am – Genetic Testing Blood Collection
• 9:10am – Frank Lehmann-Horn – Anesthesia – Pearls and Pitfalls in Periodic Paralysis
• 9:50am: Break
• 10:00am – Lehmann-Horn – “New Research and Drug Therapies” // Hypo Survey (Frank with PPI) // Thymus Hyperplasia
• 10:50-11:10: Questions
• 11:10: Lehmann-Horn / Segal – The Genetic Testing Process and Exome Sequencing and New Differential Diagnosis Software incorporating genetic information
• 11:45am – Closing Remarks and announcements
• 12:00 – 12:30pm – Webinar Questions
• 1:00pm – Conference Ends and All Doors are locked

The Speakers

The Lectures

   View the video footage of the lectures this conference