OCT 30-31 ♦ ORLANDO, FL
Become A Sponsor For The 2021 PPA Conference
Thank you for your interest in supporting the Periodic Paralysis Association by becoming a conference sponsor. Please fill out this form below and we will contact you as soon as possible.
Live in Orlando, Florida and Streaming Online!
Date: October 30-31, 2021 (8:30 AM – 5 PM Both Days)
Location: Rosen Shingle Creek, Orlando, FL
Conference Price: $25 per family of 4
Attending Doctors:
- Stephen Cannon, MD, PhD.
- Rabi Tawil, MD, PhD.
- Nivedita Jerath MD
- Bill Harr Ph. D
All of the above doctors have confirmed their attendance and look forward to meeting with you IN-PERSON!
To make this dream come true, we need to hear from you!
As we confirm logistics and finalize the venue space, we want to know how likely you are to attend.
We must make sure that at least 75 people attend in person as we must use 40 room nights at the hotel. The room rate will be good three days prior to the conference and three days after if you wish to vacation at a beautiful time of the year in Florida.
As many of you know we have used the beautiful Shingle Creek in the past and it is a five-star resort here in the Orlando area. This year we have been given a fantastic room rate of $129 per night. Our conference space is surrounded by doors and windows to the outside patio on the ground level of the hotel.
2
DAYS OF CONFERENCE
4
DOCTORS SPEAKING
24
YEARS OF PPA
2000+
MEMBERS WORLDWIDE
Connect With People Just Like You
When you connect with other Periodic Paralysis patients, you'll create lifelong friendships and never feel alone again.
Meet Experts And Doctors
This is your best opportunity to speak directly to real experts and doctors who are working every day to find the answers we all seek.
Make Memories To Last A Lifetime
Don't miss this once-in-a-lifetime experience to create lasting connections and learn more about Periodic Paralysis than ever before.
CONFERENCE SCHEDULE
Saturday
8:30 AM - 5 PM: CONFERENCE
6 PM - 8 PM: STRONGBRIDGE DINNER
The conference will be a two-day rather than three-day conference to try to conserve everyone’s energy level.
The conference hours will be 8:30-5:00 on Saturday followed by a dinner sponsored by Strongbridge Biopharma.
sunday
9 AM - 3 PM: DOCTOR GROUP Q+A
5 PM: END OF CONFERENCE
Attendees will form small groups as the doctors travel between these groups on an hourly basis, spending sit-down time with all of you to answer your questions. We hope that this format will make your experience more intimate and allow time for all questions to be answered.
Sunday is Halloween. We encourage EVERYONE to dress in costume for the day and we will be expecting some “special guests!”
* Please let us know your intentions about attending. We will adhere to all COVID-19 precautions that are in place at the time of the conference by the CDC and hope as many of you as possible will have received your vaccine.
MEET THE DOCTORS
Stephen Cannon, MD, PhD.
Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research.
William Harr DNP, CRNA
William Harr DNP, CRNA graduated from the University of Cincinnati in December 2001 with a Master of Nursing degree in Anesthesia and became a Board-Certified Registered Nurse Anesthetist in February of 2002. In 2021, Dr. Harr completed the Doctor of Nursing Practice at Lourdes University where he has dedicated his time and research to anesthesia safety for patients who have Periodic Paralysis.
Miguel Chuquilin Arista, MD, FAAN
Dr. Chuquilin is board-certified in neurology, neuromuscular medicine and electrodiagnostic medicine. At the University of Florida, he currently serves as the Neurology Clerkship and Neuromuscular Fellowship Director.
Sandy Drenner, MTC Counseling
Sandy was and is fascinated with the mind’s ability to change in order to create a more positive beneficial quality of life. She holds certifications in Hypnosis, Clinical (Medical Support) Hypnosis, Neuro Linguistic Programming (NLP), Advanced NLP and Inner Mind Sourcing. All certifications are focused on mind change and tapping into the minds’ abilities for positive outcome.
Anita Dharwadkar, Registered Dietitian
Anita is a Registered Dietitian who is passionate about helping her clients heal their relationship with food and their body. Anita specializes in the treatment of eating disorders and chronic illnesses. Some of these chronic illnesses may be those that affect the GI system, women’s health, POTs and other rare diseases. Anita uses a person-centered approach where each individual is met with empathy, acceptance and authenticity.
Frequently Asked Questions
Yes. We understand everyone’s concerns with cold triggers. We will make sure that the temperature of the room is comfortable for all our guests. As well, we encourage you to wear your most comfortable clothes and bring your coziest blankets!
Organizers & Sponsors
The PPA believes in the power of connection. We work with partners in the patient community and medical industry who share the same goal of researching, identifying, treating, and curing Periodic Paralysis.
Location - Book Now!
Rosen Shingle Creek Resort
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.
Your PP Journey Begins Here
Contact Us
QUESTIONS?
Register For the 2021 PPA Conference
* Please Note: Each attendee must be individually registered (including children) to be accepted into the conference.