Watch The Replay Videos:
Dr Cannon: What is Primary Periodic Paralysis
Dr Cannon: Potassium and Periodic Paralysis Secondary Periodic Paralysis
Dr Cannon: Therapeutic Pipeline for Primary Periodic Paralysis
Anita Dharwadkar: Periodic Paralysis and Nutrition
Dr Chuquilin: Medication options for Primary Periodic Paralysis
Connect With People Just Like You
When you connect with other Periodic Paralysis patients, you'll create lifelong friendships and never feel alone again.
Meet Experts And Doctors
This is your best opportunity to speak directly to real experts and doctors who are working every day to find the answers we all seek.
Make Memories To Last A Lifetime
Don't miss this once-in-a-lifetime experience to create lasting connections and learn more about Periodic Paralysis than ever before.
CONFERENCE SCHEDULE
Saturday
10:00 AM - 5 PM: CONFERENCE
6 PM - 8 PM: STRONGBRIDGE DINNER PROGRAM
sunday
8:30 AM - 1 PM: DOCTOR Q+A
Sunday is Halloween. We encourage EVERYONE to dress in costume for the day!
Stay up-to-date and fully informed about the speakers, topics, and timings, ensuring you won’t miss a moment of the conference!
MEET THE DOCTORS
Stephen Cannon, MD, PhD.
Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research.
William Harr DNP, CRNA
William Harr DNP, CRNA graduated from the University of Cincinnati in December 2001 with a Master of Nursing degree in Anesthesia and became a Board-Certified Registered Nurse Anesthetist in February of 2002. In 2021, Dr. Harr completed the Doctor of Nursing Practice at Lourdes University where he has dedicated his time and research to anesthesia safety for patients who have Periodic Paralysis.
Miguel Chuquilin Arista, MD, FAAN
Dr. Chuquilin is board-certified in neurology, neuromuscular medicine and electrodiagnostic medicine. At the University of Florida, he currently serves as the Neurology Clerkship and Neuromuscular Fellowship Director.
Sandy Drenner, MTC Counseling
Sandy was and is fascinated with the mind’s ability to change in order to create a more positive beneficial quality of life. She holds certifications in Hypnosis, Clinical (Medical Support) Hypnosis, Neuro Linguistic Programming (NLP), Advanced NLP and Inner Mind Sourcing. All certifications are focused on mind change and tapping into the minds’ abilities for positive outcome.
Anita Dharwadkar, Registered Dietitian
Anita is a Registered Dietitian who is passionate about helping her clients heal their relationship with food and their body. Anita specializes in the treatment of eating disorders and chronic illnesses. Some of these chronic illnesses may be those that affect the GI system, women’s health, POTs and other rare diseases. Anita uses a person-centered approach where each individual is met with empathy, acceptance and authenticity.
Frequently Asked Questions
The temperature of the room will be set at 70 degrees. Please dress accordingly for your comfort level. Blankets will be provided for those that need them.
Organizers & Sponsors
The PPA believes in the power of connection. We work with partners in the patient community and any industry who share the same goal of researching, identifying, treating, and curing Primary Periodic Paralysis.
Coming In-Person?
IN-PERSON REGISTRATION IS CLOSED.
If you have previously signed up to join us in person, please be sure to pay the REFUNDABLE fee of $25. You can list up to four (4) family members or friends under this registration. This fee helps reduce the number of no-shows and all proceeds will go towards conference resources.
Location - Book Now!
Rosen Shingle Creek Resort
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.
