OCT 30-31 ♦ ORLANDO, FL

Live and Streaming Online!

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Date: October 30-31, 2021
Location: Rosen Shingle Creek, Orlando, FL
Conference Price: $25 per family of 4

Attending Doctors:

  • Stephen Cannon, MD, PhD.
  • Rabi Tawil, MD, PhD. (online)
  • Nivedita Jerath MD (online)
  • Bill Harr DNP, CRNA
  • Miguel Chuquilin Arista, MD, FAAN

All of the above doctors have confirmed their attendance and look forward to meeting with you!

To make this dream come true, we need to hear from you!

As we confirm logistics and finalize the venue space, we want to know how likely you are to attend.

We must make sure that at least 75 people attend in person as we must use 40 room nights at the hotel. The room rate will be good three days prior to the conference and three days after if you wish to vacation at a beautiful time of the year in Florida.

As many of you know we have used the beautiful Shingle Creek in the past and it is a five-star resort here in the Orlando area. This year we have been given a fantastic room rate of $129 per night.

2

DAYS OF CONFERENCE

5

DOCTORS SPEAKING

24

YEARS OF PPA

2000+

MEMBERS WORLDWIDE

Connect With People Just Like You

When you connect with other Periodic Paralysis patients, you'll create lifelong friendships and never feel alone again.

Meet Experts And Doctors

This is your best opportunity to speak directly to real experts and doctors who are working every day to find the answers we all seek.

Make Memories To Last A Lifetime

Don't miss this once-in-a-lifetime experience to create lasting connections and learn more about Periodic Paralysis than ever before.

CONFERENCE SCHEDULE

Saturday

10:00 AM - 5 PM: CONFERENCE

6 PM - 8 PM: STRONGBRIDGE DINNER PROGRAM

sunday

8:30 AM - 1 PM: DOCTOR Q+A

We will begin Covid Testing on Saturday morning prior to the start of the conference. You will receive a link to schedule your no-cost-to-you, rapid nasal test between 7 AM – 10 AM. Once you receive a negative test, you will be able to enter the conference. 
Sunday is Halloween. We encourage EVERYONE to dress in costume for the day!

Due to the number of attendees and social distancing guidelines, we are now located in a larger room that provides adequate space for social distancing. *Please note this room does not provide natural lighting.

We will adhere to all COVID-19 precautions that are in place at the time of the conference by the CDC and the state of Florida.

We will continue to update you as it gets closer to the big event. If you have any questions, please click here to contact us now.
MEET THE DOCTORS
Dr. Cannon Research Expert Periodic_Paralysis_Association

Stephen Cannon, MD, PhD.

Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research.

Rabi Tawil, MD, PhD.

As a clinical researcher, Dr. Tawil’s focus on the clinical manifestations and treatment of the periodic paralyses. His research led to the recognition of the Andersen-Tawil Syndrome (ATS) as a distinct form of periodic paralysis.

Nivedita Jerath MD

Nivedita Jerath, MD, MS, is a board-certified neurologist with outstanding credentials and a special interest in helping patients with hereditary motor and sensory neuropathies.

William Harr DNP, CRNA

Mr. William Harr has a Bachelor of Arts in Business Management, a Doctor of Science in Nursing, and is a Board Certified, Registered Nurse Anesthetist. Mr. Harr is currently completing his Doctor of Nursing studies at Lourdes University with a focus on translating research into clinical practice for safer anesthesia for periodic paralysis patients.

Miguel Chuquilin Arista, MD, FAAN

Dr. Chuquilin is board-certified in neurology, neuromuscular medicine and electrodiagnostic medicine. At the University of Florida, he currently serves as the Neurology Clerkship and Neuromuscular Fellowship Director.

Frequently Asked Questions

Yes. We understand everyone’s concerns with cold triggers. We will make sure that the temperature of the room is comfortable for all our guests. As well, we encourage you to wear your most comfortable clothes and bring your coziest blankets!

Yes! First responders are there during the duration of the conference. 

Organizers & Sponsors

The PPA believes in the power of connection. We work with partners in the patient community and medical industry who share the same goal of researching, identifying, treating, and curing Primary Periodic Paralysis.

HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.

Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.

Contact Us
QUESTIONS?