2021 Conference Video Replays:
Safe Anesthesia for Periodic Paralysis Patients During Surgery
PPA SUMMIT 2021 Supercut #2
Family Genetic Testing Finds SCNA4A Variant Defect
PPA SUMMIT 2021 Supercut #3
CRISPR Editing for Rare Disease, Periodic Paralysis
PPA SUMMIT 2021 Supercut #5
Andersen Tawil Syndrome
PPA SUMMIT 2021 Supercut #6
2
DAYS OF CONFERENCE
4
DOCTORS SPEAKING
24
YEARS OF PPA
2000+
MEMBERS WORLDWIDE
Connect With People Just Like You
When you connect with other Periodic Paralysis patients, you'll create lifelong friendships and never feel alone again.
Meet Experts And Doctors
This is your best opportunity to speak directly to real experts and doctors who are working every day to find the answers we all seek.
Make Memories To Last A Lifetime
Don't miss this once-in-a-lifetime experience to create lasting connections and learn more about Periodic Paralysis than ever before.
CONFERENCE SCHEDULE
Saturday
10:00 AM - 5 PM: CONFERENCE
6 PM - 8 PM: STRONGBRIDGE DINNER PROGRAM
sunday
8:30 AM - 1 PM: DOCTOR Q+A
Sunday is Halloween. We encourage EVERYONE to dress in costume for the day!
Due to the number of attendees and social distancing guidelines, we are now located in a larger room that provides adequate space for social distancing. *Please note this room does not provide natural lighting.
We will adhere to all COVID-19 precautions that are in place at the time of the conference by the CDC and the state of Florida.
MEET THE DOCTORS
Stephen Cannon, MD, PhD.
Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research.
William Harr DNP, CRNA
William Harr DNP, CRNA graduated from the University of Cincinnati in December 2001 with a Master of Nursing degree in Anesthesia and became a Board-Certified Registered Nurse Anesthetist in February of 2002. Dr. Harr has spent most of his career serving the rural communities of western Ohio. In 2021, Dr. Harr completed the Doctor of Nursing Practice at Lourdes University where he has dedicated his time and research to anesthesia safety for patients who have Periodic Paralysis. In recognition for his research, Dr. Harr received the Lourdes University College of Nursing Practice Leadership award and was one of the featured speakers for the Periodic Paralysis Conference in 2021.
Miguel Chuquilin Arista, MD, FAAN
Dr. Chuquilin is board-certified in neurology, neuromuscular medicine and electrodiagnostic medicine. At the University of Florida, he currently serves as the Neurology Clerkship and Neuromuscular Fellowship Director.
Frequently Asked Questions
Yes. We understand everyone’s concerns with cold triggers. We will make sure that the temperature of the room is comfortable for all our guests. As well, we encourage you to wear your most comfortable clothes and bring your coziest blankets!
Organizers & Sponsors
The PPA believes in the power of connection. We work with partners in the patient community and any industry who share the same goal of researching, identifying, treating, and curing Primary Periodic Paralysis.
Location - Book Now!
Rosen Shingle Creek Resort
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.
