2021 Conference Video Replays:

Repurposing A Drug for Preventing Attacks of Periodic Paralysis

PPA SUMMIT 2021 Supercut #1

Safe Anesthesia for Periodic Paralysis Patients During Surgery

PPA SUMMIT 2021 Supercut #2

Family Genetic Testing Finds SCNA4A Variant Defect

PPA SUMMIT 2021 Supercut #3

Paramyotonia Congenita – An Expert Discussion

PPA SUMMIT 2021 Supercut #4

CRISPR Editing for Rare Disease, Periodic Paralysis

PPA SUMMIT 2021 Supercut #5

Andersen Tawil Syndrome

PPA SUMMIT 2021 Supercut #6

2

DAYS OF CONFERENCE

4

DOCTORS SPEAKING

24

YEARS OF PPA

2000+

MEMBERS WORLDWIDE

Connect With People Just Like You

When you connect with other Periodic Paralysis patients, you'll create lifelong friendships and never feel alone again.

Meet Experts And Doctors

This is your best opportunity to speak directly to real experts and doctors who are working every day to find the answers we all seek.

Make Memories To Last A Lifetime

Don't miss this once-in-a-lifetime experience to create lasting connections and learn more about Periodic Paralysis than ever before.

CONFERENCE SCHEDULE

Saturday

10:00 AM - 5 PM: CONFERENCE

6 PM - 8 PM: STRONGBRIDGE DINNER PROGRAM

sunday

8:30 AM - 1 PM: DOCTOR Q+A

We will begin Covid Testing on Saturday morning prior to the start of the conference. You will receive a link to schedule your no-cost-to-you, rapid nasal test between 7 AM – 10 AM. Once you receive a negative test, you will be able to enter the conference.

Sunday is Halloween. We encourage EVERYONE to dress in costume for the day!

Due to the number of attendees and social distancing guidelines, we are now located in a larger room that provides adequate space for social distancing. *Please note this room does not provide natural lighting.

We will adhere to all COVID-19 precautions that are in place at the time of the conference by the CDC and the state of Florida.

We will continue to update you as it gets closer to the big event. If you have any questions, please click here to contact us now.

Frequently Asked Questions

Will you be able to regulate the temperature of the room?

Yes. We understand everyone’s concerns with cold triggers. We will make sure that the temperature of the room is comfortable for all our guests. As well, we encourage you to wear your most comfortable clothes and bring your coziest blankets!

Will there be emergency personnel available to help?

Yes! First responders are there during the duration of the conference.

Organizers & Sponsors

The PPA believes in the power of connection. We work with partners in the patient community and any industry who share the same goal of researching, identifying, treating, and curing Primary Periodic Paralysis.

HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.

Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.