OCT 30-31 ♦ ORLANDO, FL
Live and Streaming Online!
Date: October 30-31, 2021 (8:30 AM – 5 PM Both Days)
Location: Rosen Shingle Creek, Orlando, FL
Conference Price: $25 per family of 4
- Stephen Cannon, MD, PhD.
- Rabi Tawil, MD, PhD.
- Nivedita Jerath MD
- Bill Harr Ph. D
All of the above doctors have confirmed their attendance and look forward to meeting with you IN-PERSON!
To make this dream come true, we need to hear from you!
As we confirm logistics and finalize the venue space, we want to know how likely you are to attend.
We must make sure that at least 75 people attend in person as we must use 40 room nights at the hotel. The room rate will be good three days prior to the conference and three days after if you wish to vacation at a beautiful time of the year in Florida.
As many of you know we have used the beautiful Shingle Creek in the past and it is a five-star resort here in the Orlando area. This year we have been given a fantastic room rate of $129 per night. Our conference space is surrounded by doors and windows to the outside patio on the ground level of the hotel.
DAYS OF CONFERENCE
YEARS OF PPA
8:30 AM - 5 PM: CONFERENCE
6 PM - 8 PM: STRONGBRIDGE DINNER
The conference will be a two-day rather than three-day conference to try to conserve everyone’s energy level.
The conference hours will be 8:30-5:00 on Saturday followed by a dinner sponsored by Strongbridge Biopharma.
9 AM - 3 PM: DOCTOR GROUP Q+A
5 PM: END OF CONFERENCE
Attendees will form small groups as the doctors travel between these groups on an hourly basis, spending sit-down time with all of you to answer your questions. We hope that this format will make your experience more intimate and allow time for all questions to be answered.
Sunday is Halloween. We encourage EVERYONE to dress in costume for the day!
* Please let us know your intentions about attending. We will adhere to all COVID-19 precautions that are in place at the time of the conference by the CDC and hope as many of you as possible will have received your vaccine.
MEET THE DOCTORS
Stephen Cannon, MD, PhD.
Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research.
Rabi Tawil, MD, PhD.
As a clinical researcher, Dr. Tawil’s focus on the clinical manifestations and treatment of the periodic paralyses. His research led to the recognition of the Andersen-Tawil Syndrome (ATS) as a distinct form of periodic paralysis.
Nivedita Jerath MD
Nivedita Jerath, MD, MS, is a board-certified neurologist with outstanding credentials and a special interest in helping patients with hereditary motor and sensory neuropathies.
Bill Harr Ph. D
Frequently Asked Questions
Yes. We understand everyone’s concerns with cold triggers. We will make sure that the temperature of the room is comfortable for all our guests. As well, we encourage you to wear your most comfortable clothes and bring your coziest blankets!
Organizers & Sponsors
The PPA believes in the power of connection. We work with partners in the patient community and medical industry who share the same goal of researching, identifying, treating, and curing Periodic Paralysis.
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.