Periodic Paralysis is a group of disorders whereby patients become temporarily paralyzed due to triggers such as rest after exercise or certain foods.
The Periodic Paralysis Association is on a mission to foster awareness of the periodic paralysis, promote science-based information regarding this class of disorder, and champion the interests of the Periodic Paralysis Community.
You are not alone.
New Videos Every Tuesday at 10 AM EST
We are very excited to bring you this fresh new PPA experience. There is so much more to come, so stay tuned!
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A Rare Adventure
A series that highlights what it’s like living with Periodic Paralysis; including interviews with people just like you, how they get through their day, just living the adventure… day-to-day with this rare disease.
You’re Not Alone
This series is aimed at those who are undiagnosed or still searching for answers to their symptoms. These videos include a plethora of real-world knowledge and insight on topics such as: why can’t I move my muscles, the high probability of being misdiagnosed, people even believing you have a disease, support systems, and much, much more.
Ask the Expert
A series that features leading Neurologist and Muscle Physiologist Dr. Steven Cannon directly answering your questions from our website, Facebook, Instagram, and even on our Youtube channel. Whether you are new to PP, undiagnosed, or diagnosed for a long time; we all have questions. And sometimes the answers are hard to find. So, ask us!
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.
Monca Cramer
Treasurer
Monica Cramer grew up in Orlando, Florida and has a background in the equestrian industry, animal education, and bookkeeping. Monica was clinically diagnosed 9 years ago with Hypokalemic Periodic Paralysis. Recently her family became part of a study and Myotonia Congenita has been added to her diagnosis.
Evelyn Black
Growth Development
Evelyn Black was born in NJ but spent her formative years in Colombia, SA which she believes has afforded her a unique life perspective and a love for travel. Evelyn has a philanthropic spirit and enjoys volunteering as a mentor for at-risk youth and partnering with Habitat for Humanity.
Teresea Cochran
Secretary
Teresa Cochran has lived in Orlando, FL almost her entire life. Teresa has Hypokalemic Periodic Paralysis. She learned at the age of 15 about her disease and over the years has gained knowledge on what her triggers are, and how to manage them along with food and medication.
Partners
The PPA believes in the power of connection. We work with partners in the patient community and medical industry who share the same goal of researching, identifying, treating, and curing Periodic Paralysis.