Primary Periodic Paralysis is a group of disorders whereby patients become temporarily paralyzed due to triggers such as rest after exercise or certain foods.
The Periodic Paralysis Association is on a mission to foster awareness of the periodic paralysis, promote science-based information regarding this class of disorder, and champion the interests of the Periodic Paralysis Community.
You are not alone.
SEPT 2-3 ♦ ORLANDO, FL
A Rare Adventure
A series that highlights what it’s like living with Periodic Paralysis; including interviews with people just like you, how they get through their day, just living the adventure… day-to-day with this rare disease.
You’re Not Alone
This series is aimed at those who are undiagnosed or still searching for answers to their symptoms. These videos include a plethora of real-world knowledge and insight on topics such as: why can’t I move my muscles, the high probability of being misdiagnosed, people even believing you have a disease, support systems, and much, much more.
Ask the Expert
A series that features leading Neurologist and Muscle Physiologist Dr. Steven Cannon directly answering your questions from our website, Facebook, Instagram, and even on our Youtube channel. Whether you are new to PP, undiagnosed, or diagnosed for a long time; we all have questions. And sometimes the answers are hard to find. So, ask us!
HELP US DISCOVER ANSWERS WE ARE ALL SEEKING.
Your contribution helps fund ongoing Periodic Paralysis research and the discovery of new mutations and possible new treatments.
Meet Our Volunteer
Monica Cramer grew up in Orlando, Florida and has a background in the equestrian industry, animal education, and bookkeeping. Monica was clinically diagnosed 9 years ago with Hypokalemic Periodic Paralysis. Recently her family became part of a study and Myotonia Congenita has been added to her diagnosis.
Cienna grew up in Michigan and is a skilled communicator, passionate advocate and compassionate community leader in the broader healthcare space. Cienna enjoys modeling and has built a strong social media presence, using her platform to raise awareness for chronic conditions, disability, and build representation of disability in fashion.
Christine Conrado – Staskiewicz
Growth Development Director and Interim Treasurer
Christine was born in New Jersey and moved to Central Florida when she was seven years old. Christine has a bachelor’s degree in Business Management and Marketing from Florida Metropolitan University, and she has completed some work towards a MBA in Business Management.
Teresa Cochran has lived in Orlando, FL almost her entire life. Teresa has Hypokalemic Periodic Paralysis. She learned at the age of 15 about her disease and over the years has gained knowledge on what her triggers are, and how to manage them along with food and medication.
Donor Relations and Fundraising
Evelyn Black was born in NJ but spent her formative years in Colombia, SA which she believes has afforded her a unique life perspective and a love for travel. Evelyn has a philanthropic spirit and enjoys volunteering as a mentor for at-risk youth and partnering with Habitat for Humanity.
Mason Alley grew up in Tampa, FL. He studied Studio Art and African History at Washington and Lee University in Virginia, worked in the entertainment industry in Los Angeles, CA as a writer / producer, and currently leads a strategic growth consultancy in Gainesville, FL helping organizations adopt strategy, operations, and cultural frameworks from the technology sector to accelerate their innovation and increase their valuation.
We are here to help.
OCT 30-31 ♦ ORLANDO, FL
The PPA believes in the power of connection. We work with partners in the patient community and medical industry who share the same goal of researching, identifying, treating, and curing Periodic Paralysis.